Skip to main content
Healthcare professionals: Visit our HCP site
Healthcare professionals: Visit our HCP site
Understanding PH
What is PH?
PH Subtypes
Symptoms and Diagnosis
Genetic Kidney Stone Disease
Signs and Symptoms of PH
Diagnosis of PH
PH in Families
Living With PH
Managing PH
Explaining PH
Monitoring PH
Preparing for Appointments
Resources
PH Resources
Glossary
FAQs
For Caregivers
Tips for Caregivers
Tips for Kids With PH
Understanding PH
What is PH?
PH Subtypes
Symptoms and Diagnosis
Genetic Kidney Stone Disease
Signs and Symptoms of PH
Diagnosis of PH
PH in Families
Living With PH
Managing PH
Explaining PH
Monitoring PH
Preparing for Appointments
Resources
PH Resources
Glossary
FAQs
For Caregivers
Tips for Caregivers
Tips for Kids With PH
What is hyperoxaluria?
What is primary hyperoxaluria?
What are the 3 known subtypes of primary hyperoxaluria?
What is the definition of a rare disease?
How common is primary hyperoxaluria?
Can primary hyperoxaluria damage organs?
What is oxalate?
What is systemic oxalosis?
If I have primary hyperoxaluria, what are the chances that I will have a child with PH?
I don’t have primary hyperoxaluria, but my child does. What are the chances that I could have another child with PH?
Can the effects of primary hyperoxaluria be reversed?
How can I take part in a study on primary hyperoxaluria?
What are some key terms to know for primary hyperoxaluria?
What are some causes of frequent kidney stones?
What are the signs and symptoms of primary hyperoxaluria?
I’m an adult and I think I have primary hyperoxaluria. Can you be diagnosed only as a child?
Is it possible that my physician might not know about primary hyperoxaluria?
What are the signs of systemic oxalosis?
What is the average age of diagnosis of primary hyperoxaluria?
How can I measure how well my primary hyperoxaluria is being managed?
Is there a special diet recommended for people with primary hyperoxaluria?
If I am not getting kidney stones, does that mean my oxalate levels are under control?
I don’t have any signs or symptoms right now. Does that mean there’s no oxalate building up in my kidneys?
Do I need a special healthcare provider for primary hyperoxaluria?
What is eGFR and what does it say about how well my kidneys are working?
Where can I learn more about kidney stone removal?
Are there any treatments for primary hyperoxaluria?
What is RNAi therapy?
I have primary hyperoxaluria. Will taking vitamin B6 help?
What is dialysis and why would I or my child need it?
Where can I learn more about dialysis?
Where can I learn more about organ transplant?
Are there support groups for people with primary hyperoxaluria and their caregivers?
Does PH qualify my child for any disability-related accommodations in school?